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God, How Can This Be Happening to Us?
Rebecca Cheng
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We had been sitting in the emergency room waiting area for over an hour. It looked like many more hours would pass before we would be seen. The cases before ours were more pressing and needed immediate attention. A man was having a heart attack as they carried him in. The room was full of strangers, but like us, they were certain their situation was the most urgent. My daughter excused herself to go to the bathroom. When she came back, a woman asked, “Is your daughter all right? Because her eyes look like . . .”

“Mom, I think I am going to black out!” I bolted to the triage nurse and told her my daughter was about to faint. They rushed us into one of the small, curtained areas inside the locked door. We were now in the urgent category. We waited into the early hours of the morning for the diagnosis. There are times in life that can define our relationship to God, drawing us closer or pulling us further away. This was one of those times.

Our daughter had been tired for over a week, but we thought it was due to a lack of sleep. We later learned her fatigue was brought on by internal bleeding. She had major surgery to address the immediate symptoms, but we would wrestle with the underlying problem for years. Our daughter was essentially asymptomatic. Then something would tip the imbalance into tangible symptoms and she needed emergency room care. This happened three times in a period of four years. Would life ever become normal again? Each time the symptoms were slightly different and we spent months afterward trying to figure out the root cause and how to avoid future mishaps.

Searching for Answers

After tests and confirmation, the specialists agreed she had a chronic digestive disorder unknown to us until that day. Like many auto-immune diseases, there was no cause and no cure. Our lives became a juggling act of schedules as we visited specialists, naturopathic doctors, and primary care physicians. For years she heard the same confident assurance, “I can make you better.” Unfortunately, there was no relief, and we wondered when the next incident would occur. I knew all her symptoms were related but could not get the doctors to bring the big picture together.

We sought all kinds of answers—traditional and alternative treatments. We followed various restrictive diets for months on end hoping to heal her body. We changed our own diets to follow hers so she wouldn’t feel so badly and to make it easier to provide meals. Having such restrictions ostracized us socially as special restrictive diets are not easily supported by others. Our teenager sometimes sat with friends at restaurants drinking a beverage, unable to eat anything on the menu.

One doctor told us that her digestive system was damaged. While very young, her treatment for constant ear infections was a low dosage of antibiotics over a period of years. The doctor assured us there would be no harmful effects since the dosage was so low. At that time, little was known about how antibiotics killed both the good and bad bacteria in your system. Now we understand how taking antibiotics over several years could have harmed her digestive system. When I thought about her constant use of these prescription drugs, Satan would accuse me of being a horrible mother. It was my fault she was sick and I could not undo the past to make her better.

Thankfully, God helped us find comfort in passages like John 9:1-3 (New American Standard):

As He passed by, He saw a man blind from birth.

And His disciples asked Him, “Rabbi, who sinned, this man or his parents, that he would be born blind?”

Jesus answered, “It was neither that this man sinned, nor his parents; but it was so that the works of God might be displayed in him.”

Learning to Let Go and Trust God

I had to keep telling myself that the information regarding beneficial bacteria for our digestive systems was not commonly known then. I had always tried my best to be a good mother. Now I poured my life into making everything “right” for our daughter so she could get well and avoid future distress. As with all auto-immune diseases (such as fibromyalgia, chronic fatigue syndrome, and lupus) there was no known cause and no cure. A life of caution was required to prevent symptom flare-ups.

Stress (especially the pressure of getting excellent grades) also took its toll on her. Our Asian emphasis on grades influenced her to put tremendous pressure on herself to excel, intensifying her physical problems. We all needed to learn grace to accept this illness and its effect on our lives.

We did everything humanly possible, taking her to specialists and following many alternative and traditional treatments, spending thousands of dollars in the hopes of making her well. Finally after numerous diets, I realized I could not control my daughter’s illness and make her well. This was no reflection on me as a mother. We had to accept this chronic illness and live with it for the rest of her life. God was using this situation to build our trust in him.

While we looked for doctors to provide a cure, I realized even the best specialists are limited. God is the ultimate healer—he can bring healing emotionally, spiritually, and physically. After years, we realized there would be no miraculous cure. We have had many years of frustrations and poor health, and also some periods of good health. God stands with us through every trial. We must count it all joy (James 1:2) as we experience the hard times. He never gives us more than we can handle (1 Corinthians 10:13). This wrestling put us exactly where God wanted us to be—trusting in his sovereignty. We realized God was the one in control of her health, and he chose not to make her well for this season. As Job asked, “Shall we indeed accept good from God and not accept adversity?” (Job 2:10).

Years have passed and we haven’t found the solution. I am now more aware of my mother’s intuition and of a human doctor’s limitations. One day at a time we live our lives and have learned to eat healthier food, take nutritional supplements, live more balanced lives, and take time for ourselves. We value each day with friends and family. Life is a journey and we realize that only God can bring us through it. Sometimes life will bring us surprises. For parents of special needs children, it can be a tough calling. This has made me more aware of the needs of others and a more compassionate person. God knows what he is doing. We continue to endure with his grace.

“We count those blessed who endured. You have heard of the endurance of Job and have seen the outcome of the Lord’s dealings, that the Lord is full of compassion and is merciful” (James 5:11). |L


Rebecca Cheng is a pen name.

Suggestions for Ministering to Families with Special Needs Children

PRAY for them—for God’s strength and extra grace. Pray that doctors and parents will have the wisdom to know how best to handle the situation. Pray for parents to educate themselves to learn how best to care for the child.

ASK about dietary restrictions. Invite them to a meal or fix a meal for them and drop it off even though it may require extra work on your part. Sometimes sharing a meal gives the family enough encouragement to make it through another week.

OFFER to take some of their other children on outings with your children. Offer to babysit the special needs child. Give the parents a break when you are able.

SUPPORT fund-raising efforts for special needs children. This includes the Special Olympics, Macy’s special charity days, or local fund-raising events such as walk-a-thons.

BEFRIEND moms and dads of special needs children. Invite them to coffee. Be a prayer partner. Pray for them daily and listen to their hurts. They need to know someone cares.

CONNECT your friends with a parents’ support group and a playgroup for special needs children. These parents need others who can relate to them and their children need friends too.

RESEARCH the illness and share information, Web site links, and local clearinghouses with the parents. They may not have the time you have and you can provide valuable information if they desire it. Offer advice with an attitude of “I want to serve you,” not “Did you know this?”


—RC